they did a comedy about this kid a few years ago and was mentioned on seinfeld but i still had no idea who this boy was until i watched a doco about him today on sbs

this is the preview:

The Boy in the Bubble

David Vetter had spent his entire life inside a sterile isolator, with a protective layer of plastic shielding him from the world around him. Afflicted with a rare hereditary disease, severe combined immunodeficiency (SCID), David was defenceless against any germs. Now, his doctors were gambling on an experimental procedure to free him from his isolation – but David would live only two weeks in the outside world before succumbing to infection. In his own time, many regarded David’s twelve-year odyssey inside his bubble as a triumph of technology. This documentary is a story of medical perseverance and personal tragedy produced and directed by Barak Goodman and John Maggio. With first-hand recollections from David’s mother and the doctors, nurses, therapists, and the chaplain who cared for him, as well those who were critical of the handling of his case, this one-hour film documents the life of a little boy who became a living experiment in a fight to cure a rare disease. (From the US, in English)

would be scary if you or someone you knew came into this world with a rare disease that only you were the first one to embody…

alhamdulillah baasil came out fine…

even though the kid didn’t make it to adulthood, would be very difficult if he did…to be void of any real human touch -that didn’t have to be sterlised and be bacteria-free…he’d never know what it would be like to be physically hugged, kissed…i wouldn’t know if i would stay sane if i was in his position…

it just makes you thankful for how healthy and physically normal you are today…


~ by nursheikha on June 12, 2009.

One Response to “Bubble Boy: DAVID VETTER”

  1. He emotionally and psychologically deteriorated as a result of his treatment. So, yes, his sanity was compromised in the end. It is a sad, sad story.

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